First Naomi had her EEG done. We saw the woman who has twice put leads on her head in the monitoring unit. She recognized Naomi and said "Weren"t you just in the PMU?" I laughed and said October 2008! She said she recognized Naomi"s face but was terrible with names. I told her I can"t even imagine she remembered her at all! Naomi warmed right up to her, so she must not remember her! LOL!

We had a really good experienced person put the leads on. Which is nice when your child screams through the whole thing! Eventually she gave up the fight. No more twisting, kicking, scratching etc..... but kept on screaming.

They caught 2 seizures on the EEG. The paperwork says "atypical absence seizure". She stiffens when she has them. A tonic sort of motion. Her whole body doesn"t stiffen, mostly

But word is she"s going to be the new head of pediatric epilepsy at Rainbow Babies Children"s hospital. Which is on Euclid Ave. in Cleveland just like Cleveland Clinic!

When I first found out she was leaving I was just really hoping she"d stay in the U.S. and not go back to Europe. So to think she"s just going down the road is great news.

I still don"t know if she"ll take patients at her new position. Rainbow Babies is part of University Hospital, which I think is part of Case Western University. BEAUTIFUL campus by the way!

Naomi has a routine EEG on Tuesday then sees Dr. Tuxhorn later in the day, so we"ll no more then.

I really hope we can just move with her! We"ve seen her since November 2007 and I really don"t want to switch. Just in case I"ve already decided we will see Dr. Deepak Lachhwani if we HAVE to stay at Cleveland. He did rounds once when she stayed in patient at the pediatric monitoring unit and had a very nice bedside manner. So I"d be comfortable with him. But still really hate to think of loosing Tuxhorn.

One I know for sure is actually "unhappily married". Another is "unhappily divorced". Both should be single!

Why do they put anything? You can leave it blank.

Another funny is what people put under "interested in". I guess that could be taken any way. Some put friendship, men, women or both. I wonder if those who put men and women actually know what that sounds like.

I"ve learned to hide people on Facebook and I love that.
I wish real life was like Facebook. Where you can just delete the connection if they offend you or you just don"t like what they say.

Naomi turned 4 on March 7!

February was pretty uneventful. Mostly because we were snowed in! It was the snowiest month ever! The first really big wave came February 5 and there is still spots of snow out on the ground now! The kids used all 5 of the snow days that are incorporated into the school schedule. They also had several 2 hour delays. Naomi missed lots of therapy. She goes on Tuesday and Thursdays and that seemed to be the popular day for a new storm systems to blow through. Usually we get all our really bad weather from the north. This year I think every bad storm we got came up from Texas! It was weird! The last one to go through went past us and didn"t drop much snow. Then it went out to the coast turned around and came back and dumped snow on us! The weirdest thing ever!

Naomi has a new therapist. The local hospital where she goes for therapy cut benefits on 400 of their employees! Her OT was caught up in that and had to quit pediatric therapy so she could pick up extra hours doing therapy at nursing homes where she"ll make more money and be able to afford to pay the COBRA insurance. Her husband was recently laid off, she has a 6 year old, a 6

I"m so used to holding Naomi down. I held her in my lap and when he was trying to look in her eyes she was screaming. I held her chin and at the same time reached up and pulled down her eye lid with my thumb, with out him asking me to do so. He moved to the other eye and I did the same. He stood up looked at me and said "you"re hired!". That made me and Bill laugh.

After he told us everything was indeed fine he asked

I"m also marking this as strike 2 against Zonegran. Strike one being that she is less vocal since being on it. I"ll be talking to the nurse soon and will be sure to mention my grievances in order to try to get Naomi back off meds sooner rather than later.